The experience of illness and the needs of women with an ovarian cancer diagnosis (2014)

Montali, Lorenzo (Università degli Studi di Milano-Bicocca)
Camussi, Elisabetta (Università degli Studi di Milano-Bicocca)


Changelog (Archive version):

1.1 - 2019-03-14
* Archive notes added

1.0 - 2018-05-07
* First import routine of the study



Changelog (Source release):

* changelog not available


restricted access

UniData provides two kind of data access:

  • open data
    (all users can use the data - an expense allowance could be required)
  • restricted data
    (the data use is limited - see below)

Data Kind:
individual data

Time Dimensions:

Methodological Notes:
Methodological Notes
other documentation

Data are based on a qualitative study concerning to experiences and needs of women with an ovarian cancer diagnosis. The ovarian cancer is the second by spread among gynecological cancers, and in Italy involves about 40,000 women. The experiences of women diagnosed often create unsatisfied needs in a wide range of domains (physical, psychological / emotional, cognitive, social, informative, spiritual, existential) that have not been adequately addressed during and beyond diagnosis and treatment. Due to the side effects of treatment and the worsening of the disease, women diagnosed with ovarian cancer are at risk of experiencing significant psychological stress and reduced quality of life.
The study carried out therefore sets two objectives: the first is to explore the experience of women with ovarian cancer, in particular studying how they have experienced their diagnosis and treatment, and how the disease has affected them physically, psychologically and socially; the second objective is to understand women’s perceptions about the nature of their unsatisfied needs, and their indications about how these needs can be met.

The corpus of data is composed of 24 semi-structured interviews conducted by the research group involved in the study. The interviews were carried out following a non-directive style, which allowed the participants to define their own priorities, and with the help of a thematic script used to generate stories related to the participants’ experience. The questions presented during the interview are aimed at exploring the physical, psychological and social consequences of ovarian cancer, and exploring the unsatisfied needs and opinions of the participants on how these could be addressed. Each interview has been transcribed and anonymized in order to make the interviewed subject unidentifiable and ensure their anonymity.

Keywords: , , , , , ,

Share on Facebook Share on Google+ Share on Twitter

Topic Classification:

  • HEALTH - specific diseases and medical conditions
  • Nations: Italy

    Geographical Unit: not applicable

    Analysis Unit: individual

    Universe: Women aged 18 and over diagnosed with ovarian cancer since at least 6 months

    Sample Procedure: 24 individuals. Convenience sampling

    Weight: No weight used

    Collection Mode: face to face interview, other

    Collection Size: UniData supplies: 24 interview's transcriptions in Word format (ita), 1 interview script in PDF format (ita), 1 methodological notes in PDF format (ita), 1 Data List in PDF format (ita), 1 Archive notes in PDF format (ita) (28 file)


    Script (pdf):
    Data List (pdf):
    Data Archive Notes (pdf):
    DDI Documentation:
    DDI Documentation

    Data Use Restriction:
    Data are released for research purposes only and are subject to authorization. The redistribution to the third party, even in partial form, of data is not allowed. Please, contact UniData's archive in order to data access.

    Montali, Lorenzo; Camussi, Elisabetta. (2014) The experience of illness and the needs of women with an ovarian cancer diagnosis. UniData - Bicocca Data Archive, Milan. Study Number SN192. Data file version 1.1 doi:10.20366/unimib/unidata/SN192-1.1

    Deposit Requirement:
    The user is obliged to quote all data and documents disseminated by UniData and used in the own publications, using the information previously showed. The user is also obliged to send UniData the bibliographic citations related to the publications where the requested data and documents are used.

    Neither the depositor nor UniData bear any responsibility for the analysis or interpretation of the data produced by the user.